CHASE - Centre for Health through Action on Social Exclusion

Cerebral Palsy Quality of Life

Background

An international team of clinicians and researchers are developing a new condition-specific QOL instrument for children with cerebral palsy. This project, funded by NHMRC, is led by researchers and clinicians at Deakin University and the Royal Children's Hospital.

Cerebral Palsy Quality of Life Questionnaire for Children (CP QOL-Child)
This instrument assesses several domains of a child's life, including physical health, daily living tasks, participation in regular physical and social activities, emotional wellbeing and self-esteem, communication, acceptance, family, and services. Two versions of the instrument have been developed: one for parents (if children aged 4-12 years) and one for children (if children aged 9-12 years).

Project Partners:

Prof Elizabeth Waters ( School of Health and Social Development, Deakin University )
Dr Elise Davis ( School of Health and Social Development, Deakin University )
Dr Roslyn Boyd (Department of Neonatal Neurology, Royal Children's Hospital, Melbourne , Murdoch Children's Research Institute)
A/Prof Dinah Reddihough (Department of Child Development and Rehabilitation, Royal Children's Hospital, Melbourne, Murdoch Children's Research Institute)
Prof Andrew Mackinnon ( Centre for Mental Health Research, Australian National University , Canberra )
Prof Kerr Graham (Department of Orthopaedics, Royal Children's Hospital, Melbourne , Murdoch Children's Research Institute)
Dr Rory Wolfe ( Monash University )
Dr Richard Stevenson (Kluge Children's Rehabilitation Center and Research Institute, Virginia, USA )
Dr Kristie Bjornson (Children's Hospital and Regional Medical Center , Seattle , USA )
A/Prof Eve Blair (Western Australian Cerebral Palsy Register, WA)
Dr Peter Hoare ( Royal Hospital for Sick Children, Edinburgh , Scotland )
Prof Ulrike Ravens Sieberer (Robert-Koch Institute, Berlin, Germany)