Mental Health and Wellbeing

Disability and Disadvantage
Mental health status and implications for people with a disability, prisoners and offenders, people who are HIV-positive, long term unemployed people, rural and isolated communities and economically disadvantaged people (noting the co-morbidity that is associated with several of these statuses).

Parents with a disability
Assistive technology
Child health and wellbeing
Adults with a disability
Employment and disability

Parents with a disability

The Parent to Parent guide for parents of children with special needs.
Trudi Jones, Sally Savage, Susan Bailey, Rona Bound, Grant Boyd & Judy Lavery

This project involved the development of a book for parents that is based on information collected during interviews with 41 parents of children with special needs. It was funded by the Department of Human Services as a Rural Health Innovative Practice Fund project, and the Parent to Parent guide was completed in 2003. The interviews resulted in the identification of a diverse range of issues that were problematic, or otherwise important to the parents that were not anticipated, such as: coping in the days/ weeks following their child’s diagnosis; negotiating the specialist-client relationship; familial and marital issues; coping with the responses of friends and extended family to their child / situation; and the social experience of their child. When evaluated, the sections that were rated by parents as most useful were the chapters on Dealing with specific behaviours, Managing behaviour, and Resources. All of the parents liked the stories and quotes from other parents and the topics covered, and many of the parents indicated that the guide had prompted some positive change in their behaviour, or in how they feel about their caring role. This book has proven so popular that the Department of Human Services’ Disability office has commissioned two additional print-runs of 15,000 and 5,000 copies for distribution throughout Victoria . The Parent to Parent guide is available on the Deakin website: www.deakin.edu.au/dhs/parent_to_parent

We are currently developing a similar resource for parents of an adolescent with a disability, a project that is funded by Disability Services in the Department of Human Services. Helen Fennessy is the project manager for that project.


Risk and Resilience in young people with an intellectual disability
Judy O’Sullivan, Lynne Webber and Barrie O’Connor

There is a large body of literature about personal risk and resilience among children and adolescents from a variety of sub-populations. However, in intellectual disability research, resilience has almost exclusively been investigated and reported at the level of family stress and coping rather than an individual child's capacity to function adaptively despite severe risk. In this study young people with an intellectual disability, family members and non-family members (carers, teachers and family friends) were interviewed and asked about the young people’s relationships, coping styles, behaviour patterns and resilience. The main features placing these young people at risk included having autism or inflexible patterns of behaviour, displaying some forms of challenging behaviour, difficulty with receptive and expressive communication, living in families with high competing demands for time and living in a relatively unaccommodating community environment. The main factors leading to resilience were an attractive appearance/disposition, ability to get one’s message across, ability to adapt behaviour to changing contexts, low family stress levels and high sense of competence, stable relationships with supportive others and an accommodating/accepting community environment (both school and social). More information about this project can be obtained from Lynne Webber, lynne.webber@deakin.edu.au

Assistive technology

Assistive technology and communication
Janet Owens, Phillip Harper & Barrie O’Connor

Assistive technology research has attracted Commonwealth and State government grants, as well as industry grants over the past several years. Projects have resulted in several technology innovations including development and evaluation of accessible Internet and Email software in conjunction with staff from the School of Management Information Systems. Currently, the PhD research undertaken by Phillip Harper on the use of Videotechnology for deaf people in the workplace is the first of its type in the world and is attracting international interest. Projects with a focus on disability and assistive technology have produced academic publications, project reports, and conference presentations (eg. Harper, O’Connor & Owens, 2005; Keller, Braithwaite, Owens, & Smith, 2001; Owens, 2002; Owens, 2003; Owens, 2004; Owens, 2006; Owens & Smith, 2001; Owens & Smith, 2004; Owens & Smith, 2006; Owens & Scherer, 2003). For more information about projects in assistive technology contact Janet Owens, janet.owens@deakin.edu.au

 


Child Health and Wellbeing

Quality of Life questionnaire for children with Cerebral Palsy
Elise Davis and Elizabeth Waters

A new questionnaire, the Cerebral Palsy Quality of Life Questionniare for Children (CP QOL-Child) has been developed to measure the quality of life of children with cerebral palsy. Led by Professor Elizabeth Waters and Elise Davis, the questionnaire was developed with a team of researchers and clinicians at the Royal Children’s Hospital, and a team of international investigators. Cerebral palsy is the most common physical disability in childhood, occurring in 2–2.5 per thousand live births. Until now, researchers have not been able to measure the quality of life of children with cerebral palsy. The CP QOL-Child was developed in consultation with over 300 Victorian families and assesses the aspects of life that parents and children think are important, including social wellbeing, functioning, emotional wellbeing, participation and physical health and family health. The CP QOL- Child can be used by researchers to determine whether new and existing interventions for children with cerebral palsy increase children’s quality of life. The CP QOL- Child can be given to children and parents before and after treatment to determine if the intervention has impacted on a child’s QOL. This information can then be used to provide more information to help parents and clinicians evaluate treatment options. The questionnaire has generated much interest internationally and is used in national and international research in both Canada and Europe. More information can be obtained from elise.davis@deakin.edu.au


Does the Riding for Disabled Program impact on the quality of life of children with cerebral palsy?
Kerr Graham (Royal Children's Hospital), Elise Davis and Elizabeth Waters

For 35 years Riding for the Disabled Association (RDA) of Victoria has been providing horse riding, carriage driving and related equestrian activities to people of all ages with a wide range of disabilities. In addition to the recreational and educational benefits encountered by clients in this program there have been significant therapeutic gains for individuals although these have occurred randomly and consequently have not been documented in a formal manner. In order to bring credibility and recognition to the therapeutic components of the RDA program, RDA Victoria in conjunction with the Royal Children’s Hospital and Melbourne University School of Physiotherapy plan to embark on a small pilot research program to determine whether riding impacts on children's quality of life. 
For further information, please contact Dr Elise Davis, elise.davis@deakin.edu.au

Methodological modifications required to conduct obesity prevention research in school settings for children with an intellectual disability
Gibbs L, Baxendale A, Webber L, Waters E

Children who have an intellectual disability (ID) are at a much greater risk of obesity than those without. However, very limited research has been conducted into how the methodology used in obesity prevention research should be modified to better suit the needs of these children. A range of obesity prevention research measures were piloted in a school for children with intellectual disabilities in Melbourne. The measures included child height and weight, a lunchbox survey, playground survey, school environment questionnaire, and parent questionnaires. Additional qualitative interviews and focus groups with parents and staff were conducted to develop an understanding of the different needs of this school community. A range of issues were identified in the SDS setting that impacted on the capacity of data collectors to collect reliable and valid data for each of the quantitative measures used. The issues included reduced comprehension and attention span of students, varying physical disabilities, idiosyncratic eating and physical behaviours and a small sample population. The qualitative measures were found to be an appropriate methodology in this setting for developing an understanding of obesity prevention issues. The pilot highlighted the unsuitability of existing obesity prevention quantitative measures for this population group. Developing an accurate profile of overweight and obesity in these school communities would benefit from development and evaluation of modified research tools and protocols such as combined weighing of teacher and child, replacement of lunchbox survey with teacher report of food intake and greater reliance on qualitative measures. For further information about this project please contact Lisa Gibbs, lisa.gibbs@deakin.edu.au

 

Adults with a disability

Health and wellbeing of people with an intellectual disability
Lynne Webber & Robyn Clark

In 2005 Lynne Webber supervised an honours thesis (Robyn Clark) on health and wellbeing of people with an intellectual disability with support from the Victorian Department of Human Services (Eastern Region). The findings suggested that according to support staff, weight management is the most important issue for their clients. According to the clients, they showed a preference for more sedentary than physical activities. Very few staff had used published health promotion programs and they reported that behavioural issues, motivation of their clients and physical abilities were barriers to improving health and were unsure how to overcome these barriers. A copy of the brief report or complete report can be obtained from Lynne Webber at lynne.webber@deakin.edu.au


Financial competency
Mavis Kershaw and Lynne Webber

Many people in our community have mental impairments that reduce their capacity to look after their own financial affairs. An important question is when an administrator should be appointed to administer a person’s financial affairs? The overall aim of the thesis was to develop a framework and test that could be used to assess whether or not someone required an administrator to help them look after their own financial affairs. The results of our work suggest that there are six discrete areas of financial competence that should be considered when assessing an individual’s ability to manage their finances: (1) every day financial abilities; (2) financial judgment; (3) cognitive functioning related to financial tasks; (4) estate management; (5) debt management; and (6) support resources. In addition, we found that a test based on these six areas was able to identify individual strengths and weaknesses in financial competence. More information about this work can be obtained from Lynne Webber, lynne.webber@deakin.edu.au

 

Employment and disability

Employer satisfaction with employees with a disability
Kaye Smith, Lynne Webber, Joe Graffam, & Carlene Wilson

This study reports on survey responses from 656 employers who had employed someone with a disability, using support from disability employment agencies. Differences in employers’ ratings of employees with and without a disability in relation to employer satisfaction and work performance are outlined. Employers were found to be less satisfied with their employee with a disability than with other employees; determinants of employer satisfaction differed between the two employee groups; and employers were predisposed to be more satisfied with employees with a disability than with other employees in relation to the work performance variables tested. Identifying areas directly related to employer satisfaction, and highlighting important differences in factors that determine employer satisfaction between these two employee groups provides valuable direction for effective strategic planning of service intervention. For more information about this project contact Kaye Smith, kaye.smith@deakin.edu.au

 

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15th April 2010